A few days ago I was asked by my dear friend Joyce to do a very special special shoot of a very sweet, beautiful and special girl.Her name is Hailey she is now 14 months old.
Hailey was born with Down’s Syndrome, she also developed Epilepsy plus Pontocerebellar Hypoplasia type 1c in combination with the muscle disease SMA. They give an average life expectancy of 20 months with SMA.I didn’t have to think long to do this,I honestly thought it was an honor to be able to do this. Last Saturday the time had come, we filled the car with a lot of stuff at 7 o’clock in the morning and went to see Hailey and her mom and dad and her little brother Liam of 3 years. Upon arrival we were so warmly welcomed that all my nerves were gone immediately. The shoot (corona test with gloves and mouth mask) went great.Dear Iris and Norbert-Jan van Spijk I have deep resect for you how you keep going and how you are with Hailey and how you fight for her she could not have wished for a better mom and dad, now that I type this I get fat again Goosebumps.
Dear Hailey, what a sweet, beautiful, special girl you are, you stole my heart forever. I will never forget you and I hope that Daddy, Mommy, Liam and the rest of your dear family will enjoy you for a very long time my sweet little girl
Another special thank you to Grandma for helping out during the shoot
At the request of mom I removed the tubes for the oxygen and sin food from 1 photo